Dr Alana Roy

Consultation, research and policy development: lessons from the deafblind community about co-creating a more inclusive world

Graduated in 2020

Project Description

This thesis reports on the exploration of good practice approaches to consultation, research, policy and service development with Deafblind people. Given the exploratory nature of the study, a multi-phased and multi-modal programme of research was conducted that incorporated both qualitative and quantitative components. The majority of the research programme utilised qualitative methods. The literature was surveyed to ascertain an understanding of the state of the science in the field of Deafblindness in regard to current consultation, research, policy and service development guidelines and practices with Deafblind people and the professionals who support them.  The review of the literature sought to determine if there was evidence of a distinct Deafblind culture and community and if so, how this might interact with and affect the social inclusion/exclusion of Deafblind people.  Moreover, the literature search investigated whether any co-creation, co-design or emancipatory research involved Deafblind people and the impact of associated complexities and barriers that arise from working with sign language interpreters and other gatekeepers of access to knowledge, such as the professionals in the field of Deafblindness.

Supervisors

Professor Keith McVilly, School of Social and Political Sciences
Professor Beth Crisp, Deakin University